Dementia is a Young Person Disease
If you have followed me much you have heard me use the expression ‘What is Good for the Heart is Good for the Brain’.
Once again there is a tie linking what is ‘good for the heart is good for the brain’. You may be able to lower your risk of dementia by lowering your blood pressure. By lowering the top number, systolic pressure below 120 may reduce the risk of dementia by 19%
This is but one possible key to help in reducing dementia.
click on the link below to watch the short CBS News clip
Heart health=total health
Help For Locating Lost Alzheimers Suffers
MedicAlert® + Alzheimer’s Association Safe Return® is a 24-hour nationwide emergency response service for individuals with Alzheimer’s or related dementia who wander or have a medical emergency. We provide 24-hour assistance, no matter when or where the person is reported missing.
6 out of 10 people with dementia will wander and become lost
How it works
If an individual with Alzheimer’s or related dementia wanders and becomes lost, caregivers can call the 24-hour emergency response line (800.625.3780) to report it.
To read the full article click on the link below.
Source: MedicAlert + Safe Return
Disaster Preparedness for Alzheimer’s Caregivers
People with Alzheimer’s disease can be especially vulnerable during disasters such as severe weather, fires, floods, earthquakes, and other emergency situations. It is important for caregivers to have a disaster plan that includes the special needs of people with Alzheimer’s, whose impairments in memory and reasoning severely limit their ability to act appropriately in crises.
In general, you should prepare to meet the needs of your family for 3 to 7 days, including having supplies and backup options if you lose basic services such as water or electricity. Organizations such as the Federal Emergency Management Agency (FEMA) and the American Red Cross provide information about making a general disaster preparedness plan.
As you assemble supplies for your family’s disaster kit, consider the needs of the person with Alzheimer’s. Be sure to store all supplies in a watertight container. The kit might contain:
Other supplies you may need are:
- Warm clothing and sturdy shoes
- Spare eyeglasses and hearing-aid batteries
- Flashlights and extra batteries
If You Must Leave Home
In some situations, you may decide to “ride out” a natural disaster at home. In others, you may need to move to a safer place, like a community shelter or someone’s home. Relocation may make the person with Alzheimer’s very anxious. Be sensitive to his or her emotions. Stay close, offer your hand, or give the person reassuring hugs.
To plan for an evacuation:
- Know how to get to the nearest emergency shelters.
- If you don’t drive or driving is dangerous, arrange for someone to transport your group.
- Make sure the person with Alzheimer’s wears an ID bracelet.
- Take both general supplies and your Alzheimer’s emergency kit.
- Pack familiar, comforting items. If possible, plan to take along the household pet.
- Save emergency numbers in your cell phone, and keep it charged.
- Plan to keep neighbors, friends, and family informed about your location.
- If conditions are noisy or chaotic, try to find a quieter place.
If You Are Separated
It’s very important to stay with a person with Alzheimer’s in a disaster. Do not count on the person to stay in one place while you go to get help. However, the unexpected can happen, so it is a good idea to plan for possible separation:
- Enroll the person in the MedicAlert® + Alzheimer’s Association Safe Return® Program—an identification and support service for people who may become lost.
- Prepare for wandering. Place labels in garments to aid in identification. Keep an article of the person’s clothing in a plastic bag to help dogs find him or her.
- Identify specific neighbors or nearby family and friends who would be willing to help in a crisis. Make a plan of action with them should the person with Alzheimer’s be unattended during a crisis. Tell neighbors about the person’s specific disabilities, including the inability to follow complex instructions, memory loss, impaired judgment, disorientation, and confusion. Give examples of simple one-step instructions that the person may be able to follow.
- Give someone you trust a house key and a list of emergency phone numbers.
- Provide local police and emergency services with photos of the person with Alzheimer’s and copies of his or her medical documents, so they are aware of the person’s needs.
Source: Disaster Preparedness for Alzheimer’s Caregivers
Use the following room-by-room checklist to alert you to potential hazards and to record any changes you need to make to help keep a person with Alzheimer’s disease safe. You can buy products or gadgets necessary for home safety at stores carrying hardware, electronics, medical supplies, and children’s items.
Keep in mind that it may not be necessary to make all of the suggested changes. This article covers a wide range of safety concerns that may arise, and some modifications may never be needed. It is important, however, to re-evaluate home safety periodically as behavior and abilities change.
Throughout the Home
- Display emergency numbers and your home address near all telephones.
- Use an answering machine when you cannot answer phone calls, and set it to turn on after the fewest number of rings possible. A person with Alzheimer’s disease often may be unable to take messages or could become a victim of telephone exploitation. Turn ringers on low to avoid distraction and confusion. Put all portable and cell phones and equipment in a safe place so they will not be easily lost.
- Install smoke alarms and carbon monoxide detectors in or near the kitchen and all sleeping areas. Check their functioning and batteries frequently.
- Avoid the use of flammable and volatile compounds near gas appliances. Do not store these materials in an area where a gas pilot light is used.
- Install secure locks on all outside doors and windows.
- Install alarms that notify you when a door or window is opened.
- Hide a spare house key outside in case the person with Alzheimer’s disease locks you out of the house.
- Avoid the use of extension cords if possible by placing lamps and appliances close to electrical outlets. Tack extension cords to the baseboards of a room to avoid tripping.
- Cover unused electrical outlets with childproof plugs.
- Place red tape around floor vents, radiators, and other heating devices to deter the person with Alzheimer’s from standing on or touching them when hot.
- Check all rooms for adequate lighting.
- Place light switches at the top and the bottom of stairs.
- Stairways should have at least one handrail that extends beyond the first and last steps. If possible, stairways should be carpeted or have safety grip strips. Put a gate across the stairs if the person has balance problems.
- Keep all medications (prescription and over-the-counter) locked. Each bottle of prescription medicine should be clearly labeled with the person’s name, the name of the drug, drug strength, dosage frequency, and expiration date. Child-resistant caps are available if needed.
- Keep all alcohol in a locked cabinet or out of reach of the person with Alzheimer’s. Drinking alcohol can increase confusion.
- If the person with Alzheimer’s smokes, remove matches, lighters, ashtrays, cigarettes, and other means of smoking from view. This reduces fire hazards, and with these reminders out of sight, the person may forget the desire to smoke.
- Avoid clutter, which can create confusion and danger. Throw out or recycle newspapers and magazines regularly. Keep all areas where people walk free of furniture.
- Keep plastic bags out of reach. A person with Alzheimer’s disease may choke or suffocate.
- Remove all guns and other weapons from the home or lock them up. Install safety locks on guns or remove ammunition and firing pins.
- Lock all power tools and machinery in the garage, workroom, or basement.
- Remove all poisonous plants from the home. Check with local nurseries or contact poison control (1-800-222-1222) for a list of poisonous plants.
- Make sure all computer equipment and accessories, including electrical cords, are kept out of the way. If valuable documents or materials are stored on a home computer, protect the files with passwords and back up the files. Password protect access to the Internet and restrict the amount of online time without supervision. Consider monitoring computer use by the person with Alzheimer’s, and install software that screens for objectionable or offensive material on the Internet.
- Keep fish tanks out of reach. The combination of glass, water, electrical pumps, and potentially poisonous aquatic life could be harmful to a curious person with Alzheimer’s disease.
Outside Approaches to the House
- Keep steps sturdy and textured to prevent falls in wet or icy weather.
- Mark the edges of steps with bright or reflective tape.
- Consider installing a ramp with handrails as an alternative to the steps.
- Eliminate uneven surfaces or walkways, hoses, and other objects that may cause a person to trip.
- Restrict access to a swimming pool by fencing it with a locked gate, covering it, and closely supervising it when in use.
- In the patio area, remove the fuel source and fire starters from any grills when not in use, and supervise use when the person with Alzheimer’s is present.
- Place a small bench or table by the entry door to hold parcels while unlocking the door.
- Make sure outside lighting is adequate. Light sensors that turn on lights automatically as you approach the house may be useful. They also may be used in other parts of the home.
- Prune bushes and foliage well away from walkways and doorways.
- Consider a “NO SOLICITING” sign for the front gate or door.
- Remove scatter rugs and throw rugs.
- Use textured strips or nonskid wax on hardwood and tile floors to prevent slipping.
- Install childproof door latches on storage cabinets and drawers designated for breakable or dangerous items. Lock away all household cleaning products, matches, knives, scissors, blades, small appliances, and anything valuable.
- If prescription or nonprescription drugs are kept in the kitchen, store them in a locked cabinet.
- Remove scatter rugs and foam pads from the floor.
- Install safety knobs and an automatic shut-off switch on the stove.
- Do not use or store flammable liquids in the kitchen. Lock them in the garage or in an outside storage unit.
- Keep a night-light in the kitchen.
- Remove or secure the family “junk drawer.” A person with Alzheimer’s may eat small items such as matches, hardware, erasers, plastics, etc.
- Remove artificial fruits and vegetables or food-shaped kitchen magnets, which might appear to be edible.
- Insert a drain trap in the kitchen sink to catch anything that may otherwise become lost or clog the plumbing.
- Consider disconnecting the garbage disposal. People with Alzheimer’s may place objects or their own hands in the disposal.
- Anticipate the reasons a person with Alzheimer’s disease might get out of bed, such as hunger, thirst, going to the bathroom, restlessness, and pain. Try to meet these needs by offering food and fluids and scheduling ample toileting.
- Use a night-light.
- Use a monitoring device (like those used for infants) to alert you to any sounds indicating a fall or other need for help. This also is an effective device for bathrooms.
- Remove scatter rugs and throw rugs.
- Remove portable space heaters. If you use portable fans, be sure that objects cannot be placed in the blades.
- Be cautious when using electric mattress pads, electric blankets, electric sheets, and heating pads, all of which can cause burns and fires. Keep controls out of reach.
- If the person with Alzheimer’s disease is at risk of falling out of bed, place mats next to the bed, as long as they do not create a greater risk of an accident.
- Use transfer or mobility aids.
- If you are considering using a hospital-type bed with rails and/or wheels, read the Food and Drug Administration’s safety information.
- Do not leave a severely impaired person with Alzheimer’s alone in the bathroom.
- Remove the lock from the bathroom door to prevent the person with Alzheimer’s from getting locked inside.
- Place nonskid adhesive strips, decals, or mats in the tub and shower. If the bathroom is uncarpeted, consider placing these strips next to the tub, toilet, and sink.
- Use washable wall-to-wall bathroom carpeting to prevent slipping on wet tile floors.
- Use a raised toilet seat with handrails, or install grab bars beside the toilet.
- Install grab bars in the tub/shower. A grab bar in contrasting color to the wall is easier to see.
- Use a foam rubber faucet cover (often used for small children) in the tub to prevent serious injury should the person with Alzheimer’s fall.
- Use a plastic shower stool and a hand-held shower head to make bathing easier.
- In the shower, tub, and sink use a single faucet that mixes hot and cold water to avoid burns.
- Set the water heater at 120°F to avoid scalding tap water.
- Insert drain traps in sinks to catch small items that may be lost or flushed down the drain.
- Store medications (prescription and nonprescription) in a locked cabinet. Check medication dates and dispose of outdated medications.
- Remove cleaning products from under the sink, or lock them away.
- Use a night-light.
- Remove small electrical appliances from the bathroom. Cover electrical outlets.
- If a man with Alzheimer’s disease uses an electric razor, have him use a mirror outside the bathroom to avoid water contact.
- Clear electrical cords from all areas where people walk.
- Remove scatter rugs or throw rugs. Repair or replace any torn carpet.
- Place decals at eye level on sliding glass doors, picture windows, or furniture with large glass panels to identify the glass pane.
- Do not leave the person with Alzheimer’s disease alone with an open fire in the fireplace. Consider alternative heating sources.
- Keep matches and cigarette lighters out of reach.
- Keep the remote controls for the television, DVD player, and stereo system out of sight.
- Keep the door to the laundry room locked if possible.
- Lock all laundry products in a cabinet. Laundry detergent pods can be fatal if eaten by accident.
- Remove large knobs from the washer and dryer if the person with Alzheimer’s tampers with machinery.
- Close and latch the doors and lids to the washer and dryer to prevent objects from being placed in the machines.
- Lock access to all garages, sheds, and basements if possible.
- Inside a garage or shed, keep all potentially dangerous items, such as tools, tackle, machines, and sporting equipment either locked away in cabinets or in appropriate boxes/cases.
- Secure and lock all motor vehicles and keep them out of sight if possible. Consider covering vehicles, including bicycles, that are not frequently used. This may reduce the possibility that the person with Alzheimer’s will think about leaving.
- Keep all toxic materials, such as paint, fertilizers, gasoline, or cleaning supplies, out of view. Either put them in a high, dry place or lock them in a cabinet.
- If the person with Alzheimer’s is permitted in a garage, shed, or basement, preferably with supervision, make sure the area is well lit and that stairs have a handrail and are safe to walk up and down. Keep walkways clear of debris and clutter, and place overhanging items out of reach.
Source: Home Safety Checklist for Alzheimer’s Disease
Communicating Safety and Love
What words bring comfort to you…. cat, dog, mom, church, maybe even the word blue brings a sense of calm to you? Why do you suppose these words hold some sort of importance to you? Chances are they evoke feelings from somewhere deep inside you. If you think of a word as an emotion, rather than as the item the word describes; your new found ability to communicate could be the key that opens the door of understanding to communicate with a person living with Alzheimer’s.
Not only words but familiar surroundings like sitting at a dinner table or passing a church can bring emotions to the surface. How about a familiar task such as folding laundry or washing dishes? What about a picture of a baby or a picture of a field of flowers? All of these simple things we may take for granted every day may have great meaning for a person living with Alzheimer’s. When I hear the words “homemade bread” or even bread pan….. I smile. It takes me back to the feeling of being loved by my Gram. All her hugs and kisses she bestowed upon me throughout her life. It also can bring back sadness. I miss the wonderful smell of baking bread as I entered her kitchen. I miss my Gram.
Listen with your heart
When your loved one says a word. Don’t take it for its literal meaning. Take a minute and think about what may revolve around that word. It may take them back in time, unlocking emotions from deep within their heart. Instead of just listening with your ears…..Listen with your heart. Let the true communication begin.
Through the Severe Stages
You and your loved have now entered the diagnosed stage seven of dementia. You have struggled through the confusion of “What is wrong with my loved one?”, the loss of dreams with the initial diagnosis, watching the gradual decline of their cognitive abilities and now their physical abilities are diminishing. How do you continue to communicate?
Having worked in a nursing home activity dept I learned that communication drastically changes during this final stage. Words no longer have the same meaning or any meaning at all. Touch and gestures become your trusted connection to helping the individual living with Alzheimer’s navigate this final stage. These suggestions may seem difficult for some because they are more intimate ( unless you’ve helped with personal care) than other means of communication…. Holding hands, applying lotion to arms and legs, brushing hair, washing hands and face and polishing fingernails are just a few suggestions.
Just because someone can no longer verbally communicate doesn’t mean they won’t enjoy hearing you talk to them. Make eye contact and be animated…..widen your eyes or wrinkle your nose. Talk to them about their former occupations, the hobbies they once enjoyed or just talk to them about the weather. The gift of gab can be a very important trait for a caregiver. Read to them… the newspaper, a short story or passages from the Bible. Play music for them ….. tap them gently on the arm to the beat of the music or sing to them. Sometimes just the presence of another person close by is comforting…..a touch to their hand or forearm may be all they need or can tolerate. Remember to take your cues from the person living with Alzheimer’s. Pay close attention to their facial expressions or attempts to move their arm or hand away from your touch to ensure they are comfortable with the interaction.
The Power of a Smile
Never underestimate the power of a smile. Most people can’t help but smile back when someone smiles at them. Why would that be any different for someone living with Alzheimer’s? Smiles are inviting and contagious. One smile… happy or sympathetic can set the tone for the whole interaction. Communication is not always about what you say, but about how you make someone feel. Make them feel safe, loved and understood…. there are no better feelings in the world.
I am going to share another video. This one is a Ted Talk, the speaker is Lisa Genova the author of ‘Still Alice’.
Again this is not one of our original but a repost from https://kateswaffer.com/2016/09/24/what-is-dementia-part-4-understanding-aphasia/ She has done a far better job of explaining than I could have. To read the entire article click on the link at the bottom.
In my continuing series on What is dementia?, Part 4 I promised to review aphasia. It suddenly seems more relevant to me as well just now too; I was diagnosed with PPA when first diagnosed with a front temporal dementia, although had seemed to stave off the progression with speech pathology techniques. However in this last few weeks, it is getting noticeably worse, and my ability to read, handwrite, understand others, comprehend what I read and speak is becoming much more difficult.
Many types or causes of dementia also have similar symptoms such as memory loss and can include varying types of aphasia. The National Aphasia Association in the USA defines aphasia like this:
Please click on the link to read the rest of the article
Source: What is dementia? Part 4 – Understanding Aphasia
Again this is not an original post but a repost from https://kateswaffer.com/2016/09/22/what-is-dementia-part-3/ It is necessary to follow the link at the bottom of this post to read the rest of the article
In my continuing series on What is dementia?, for part 3, I am explaining in more detail, the two infographics published earlier this month. Please do let me know if I have any information incorrect! I am doing my best to ensure it is both accurate and easily understood by those of us living with or supporting someone with dementia. They are not meant to be necessary for medical or nursing students, although they may be helpful to them.
Many people ask is Alzheimer’s Disease dementia.
Many who have been diagnosed with dementia are told their dementia is FTD or PPA.
I often hear clinical experts and researchers say, ‘Alzheimer’s or dementia’, also implying that Alzheimer’s is not dementia.
Please click on the link to read the rest of ‘What is Dementia Part 3’ Source: What is dementia? Part 3
Again this is not one of our original post but a reprint from https://kateswaffer.com/2016/09/19/what-is-dementia-part-2/A
There is no time today to write a blog, or for anything other than adding this graphic, which is also from our book, Diagnosed with Alzheimer’s or another dementia released last week. Like the umbrella graphic from a couple of days ago, this does not outline every single symptom but is an overview of what to expect from damage in the different areas of the brain. Again this was produced by my BUB, but the information within the boxes comes from Lee-Fay and myself; we felt a simple graphic like this would be helpful as an overview of the disabilities caused by the various symptoms of dementia, specific to which area of the brain is affected.
Source: What is dementia? Part 2