Biogen’s big success in a new Alzheimer’s drug trial wasn’t just a win for the company. It comes after years of failures with every drug tested for dementia and growing doubts about the drug industry’s narrow focus on amyloid proteins.
I thought I would share one of the playlists that I use. I use this one several times a week. This is just an example and suggestion. It is a soothing playlist, it sometimes calms the agitation.
Artist includes Ed Sheeran, Josh Ritter, Leon Bridges, Seal, B.J. Thomas, Sam Smith, Van Morrison, Adele, James Taylor, and Aaron Neville.
I am going to close this weeks topic on what is the difference between Alzheimer’s and dementia with one more video. I hope you have a better understanding of the difference. If not please email us at email@example.com or put it in the comments below.
If there are other topics you would like for us to cover drop us an email at the above link.
Unless you have experienced what happens as your love slowly disappears before your eyes. I am not sure you will understand nor, am I sure that I can put into words what it is like. I wake some mornings with my wife wanting to know who I am and wanting to know what I am doing in her house. That may be followed by moments later with her wondering where she is, and why she is here. While it is sad and disturbing for me, it has to be incredibly frighting for her. She will retreat to the bathroom and have a conversation with herself in the mirror. This is where she feels safe.
As I attempt to soothe her anxiety by making sure she is hydrated, fed and no other discomforts. There are times that she does not want me in the room or anywhere near. So I will leave a plastic sippy cup of sweet tea and a breakfast bar where she will find it. I’ll check back in, I am never more than an earshot away because she has fallen multiple times, I’ll replenish her tea and breakfast bar as needed. This ritual will last from several minutes to most of the day. Sometimes the only thing that will change the situation is what I call a ‘reset’. A change, for us now a reset is our friend and caregiver Kim coming in. I think she can better relate to another woman now, but I am unsure. It is, however, a change, something new, a distraction from the previous battle. Does the trick most of the time.
As I sit here watching her pace the floor.
I’ll have to finish the story later, it is just too hard.
2I just finished updating the header photos on the website. These pictures will randomly load when someone visits the website. I chose pictures that may help explain what my wife is experiencing today. The day started off good better than most days have started off here lately.
That was followed by her wanting to go somewhere. The where was not important, she just wanted to go see some ‘peeples’. She starves for social interaction so she will ask several times a day where are the ‘peeples’. However, she was not dressed. I attempted to explain that she needed to get dressed first then we would go out somewhere. Like I said the where is not important.
She had shown very little interest in eating so she had not eaten very much. Her agitation level is somewhat proportional to her hunger level. She has never been one who could go long without eating breakfast. Or going very long without eating. After eating a couple of breakfast bars and drinking some ice tea. Her anxiety started to ease. We always keep plates and bowls of food out for her to eat. Fresh fruit, cheese, vegetables cut up into bite-size pieces, small bites of some form of protein.
For those who have followed me on Facebook, you should know I employ music therapy, as an emotional regulator. Soon after she had got up this morning. I put on some music that she finds soothing. About 30 – 45 minutes after eating she was dancing to the music. Her anxiety and agitation levels were now as calm as a glassy lake.
This calm lasted a couple of hours before restlessness returned, but we are still not fully dressed. This time the anxiety was brought on by the need for a bowel movement. She is not able to fully communicate what it is that is bothering her. So we a left to guess and make educated decisions. We only get so many attempts before anger sets in. And she will pop off with a remark like ‘whats wrong with you are you stupid’. Rule number 1 never argue. A typical reply at least for me is. Maybe, can you help me?
Failure to determine what is causing agitation will lead to all kinds of other issues that will have to be resolved. These issues will wreak havoc on everyone involved.
What has not happened so far today is we have not hit a wall. However, the day is not over and sometimes those walls come at night when she refuses to lay down.
Thanks for visiting
Again this is not one of our original but a repost from https://kateswaffer.com/2016/09/24/what-is-dementia-part-4-understanding-aphasia/ She has done a far better job of explaining than I could have. To read the entire article click on the link at the bottom.
In my continuing series on What is dementia?, Part 4 I promised to review aphasia. It suddenly seems more relevant to me as well just now too; I was diagnosed with PPA when first diagnosed with a front temporal dementia, although had seemed to stave off the progression with speech pathology techniques. However in this last few weeks, it is getting noticeably worse, and my ability to read, handwrite, understand others, comprehend what I read and speak is becoming much more difficult.
Many types or causes of dementia also have similar symptoms such as memory loss and can include varying types of aphasia. The National Aphasia Association in the USA defines aphasia like this:
Please click on the link to read the rest of the article
The Small Things Make A Difference